The Cystic Fibrosis Association of North Dakota (CFA) devotes its time and financial resources to helping North Dakotans with cystic fibrosis (CF) and their families by:
The CFA is a statewide non-profit corporation. It is not affiliated with any national or international parent organization, nor does it receive any government assistance.
A dedicated staff of four professionals coordinates activities throughout the state.
The Cystic Fibrosis Association of North Dakota was formed by parents of children with cystic fibrosis in 1980 to raise funds for research, education and assistance to persons suffering from cystic fibrosis. The Association is not affiliated with the Cystic Fibrosis Foundation or any other parent organization, nor does the Association accept or receive any government funding.
Since its inception, the Association has assisted hundreds of North Dakotans and provided almost two million dollars in programs and services to assist North Dakotans with CF.
The Cystic Fibrosis Association of North Dakota exists to assist families and individuals dealing with cystic fibrosis by providing financial, emotional and educational support in their day to day battle with this unrelenting, incurable disease.
About Cystic Fibrosis
Cystic fibrosis (CF) is the most common fatal genetic disease in the US today. It affects about 30,000 children and young adults, and occurs in approximately one in every 2,000 live births. One in 25 Americans (more than 12 million people) is an unknowing, symptom-less carrier of the defective gene causing CF. If both parents carry the defective gene, there is a 25% chance that each child they have may have CF.
There are over 2000 different genetic mutations causing cystic fibrosis. The most common mutations attack the lungs and digestive system. This results in frequent, severe lung infections, which eventually kill the lungs, as well as halting the production of pancreatic enzymes necessary for digestion and nutritional absorption.
Although there is no cure, genetic research has produced several medications that have found increasing success in treating the symptoms of the disease. These medications are very expensive, and must be taken every day together with enzyme supplements, antibiotics, special vitamin supplements and mucolytics. In addition, most young people with CF must do chest physiotherapy and inhalation therapy several times each day in order to maintain optimum health.
The content of cfanorthdakota.comis provided on an “as is” and “as available” basis. The Cystic Fibrosis Association of North Dakota and cfanorthdakota.com gives no warranty of any kind in relation to our feed or our content and we disclaim all implied warranties, including, but not limited to, satisfactory quality, fitness for purpose, non-infringement, compatibility and accuracy. You are responsible for implementing sufficient procedures and checkpoints to satisfy your particular requirements for protection from viruses, worms, Trojan horses or other code that may manifest contaminating or destructive properties. The Cystic Fibrosis Association of North Dakota and cfanorthdakota.com does not assume any responsibility or risk for your use of the Internet.
The Cystic Fibrosis Association of North Dakota and cfanorthdakota.com content contains medical and pharmaceutical data supplied for general information purposes only. cfanorthdakota.com is a website that is developed for its members and the general public. The materials contained within this website do not constitute medical or pharmaceutical advice, which should be sought from qualified medical and pharmaceutical advisers. We do not answer any medical questions of any kind, in any format, or any questions relating to medications. Any views expressed by third parties in the website do not reflect the opinions, in any way, of the Cystic Fibrosis Association of North Dakota or its staff. Descriptions of, or references to, products or publications does not imply endorsement of that product or publication.
The content contained on cfanorthdakota.com is not necessarily complete and up-to-date. Information obtained by using this site is not exhaustive and does not cover all issues, topics, or facts that may be relevant to your goals.
cfanorthdakota.com contains links and forms that link to external web sites. In no event shall cfanorthdakota.com or the Cystic Fibrosis Association of North Dakota be responsible for the content, accuracy or opinions expressed in these web sites. These web sites are not monitored or checked for accuracy or completeness by us. Inclusion of web sites linked to via forms and links in our site does not imply approval or endorsement of the linked web site by us. If you decide to leave our web site and access these third-party sites, you do so at your own risk.
The material displayed on cfanorthdakota.com is provided without any guarantees, conditions or warranties as to its accuracy. To the extent permitted by law, we and third parties connected to us hereby expressly exclude:
• All conditions, warranties and other terms which might otherwise be implied by statute, common law or the law of equity;
• Any liability for any direct, indirect or consequential loss or damage incurred by any user in connection with cfanorthdakota.com, or in connection with the use, inability to use, or results of the use of cfanorthdakota.com<, any websites linked to it and any materials posted on it, including, without limitation any liability for loss of income or revenue; loss of business; loss of profits or contracts; loss of anticipated savings; loss of data; loss of goodwill; wasted management or office time; and for any other loss or damage of any kind, however arising and whether caused by tort (including negligence) breach of contract or otherwise, even if foreseeable.